About Beyond CKD

Leaving the road I have walked for those still on it.I share because I have been there; I write it down because I understand.One patient's story, written for fellow travellers everywhere.

I am a kidney transplant recipient. Shock at birth left me with chronic glomerulonephritis; I started hemodialysis at 26 and received a kidney transplant on 25 December 2020, at age 32. I later worked as an integrative-medicine health manager at a private hospital. Along the way the internet helped me enormously — and I also saw far too much misinformation and content that only made people more afraid.

Beyond CKD has a simple goal: to organize diet, exercise, mental wellbeing and real-life experience in language patients understand. No jargon, no fear-mongering — just someone a few steps ahead turning around to say: "This road can be walked. I'm with you."

This content is published in multiple languages because I know that whether you're in a dialysis chair in Taipei, Tokyo, Seoul or Los Angeles, the uncertainty feels the same.

My Story

My timeline

  1. 1988Birth

    Born

    A difficult birth, shock and oxygen deprivation damaged both kidneys

  2. 1990sChildhood

    Diagnosed with chronic glomerulonephritis

    Years of follow-up visits, without really understanding what they meant

  3. 2000sTeens

    The years I skipped my medication

    No symptoms, so I often forgot or refused to take it — the part I most want young patients to hear

  4. 2014Age 26

    One glass of orange juice, one ER visit

    Hyperkalaemia; kidney failure confirmed; hemodialysis began

  5. 2014–2020Age 26–32

    Six years of hemodialysis

    Three times a week, four hours each; learning fluids, potassium, phosphate — and fatigue

  6. 2020.12.25Age 32

    Kidney transplant

    A new start on Christmas Day

  7. 2021–2025Age 33–37

    Back to work and life

    Integrative-medicine health manager at a private hospital, serving diabetes and kidney patients; training and writing

  8. 2026Age 38

    Beyond CKD

    Building this site to leave the road I walked for those still on it

We believe

  • Knowledge reduces fear
  • Patient experience has unique value
  • Diet and exercise are the best complementary therapy
  • Mental health matters as much as kidney function
  • No one should walk this road alone

Editorial policy

  1. The author is a kidney transplant recipient and former integrative-medicine health manager, not a physician. All content is personal experience and a synthesis of publicly available medical information; it is not medical advice.
  2. Content on diagnosis, medication, treatment and risk cites public, verifiable sources (KDIGO, NIDDK, NKF, peer-reviewed journals, national health authorities) listed at the end of each article.
  3. There is no physician review process on this site. If professional review is added in future, the reviewer and date will be stated explicitly; credentials will never be invented.
  4. Articles are updated as evidence evolves; each shows its last-updated date. Corrections are welcome by email.
  5. No advertising, no sponsored content, no industry funding. Running costs are covered by voluntary reader donations.

Sources：Medical articles end with a reference list; the overseas facility directory shows its verification date.